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American Celiac Task Force and Food Allergy Labeling Reform

The Task Force
On March 21, 2003 representative leaders from the celiac community met at the University of Maryland’s Center for Celiac Research (CFCR) to discuss how to more powerfully impact legislation related to the food allergen labeling reform. From this meeting the American Celiac Task Force was formed. The Task Force agreed to accept the volunteer services of two very knowledgeable Washington-based women who are familiar with lobbying and legislative processes and are able to guide the task force through the legislative and lobbying process.

Recently the CFCR published a Blood Prevalence Study disclosing that 1 out of 133 people in the US have celiac disease. That’s a lot of people and a lot of buying power. The Celiac community is able to gain the attention of major manufacturing companies and reach key congressional decision makers. Through the union of research institutions, support organizations and industry representatives, we plan to present a strong unified voice for labeling reforms that will benefit all persons with celiac disease.

What You Can Do
Each representative group within The American Celiac Task Force has a job to do. You can help as well. Complete the sample letter below and send it to your congressmen and senators or feel free to use the format on your own letterhead.

Contact your local support group for guidance on other activities you can do. These organizations will call you to action and may post information on their websites. The Gluten Intolerance Group (GIG) in Seattle, Washington website http://www.gluten.net/advocacy.asp also has information to use in contacting your congressional representatives.

The following organizations have agreed to be members of the American Celiac Task Force:

Research Institutions: Celiac Disease Center at Columbia University, Peter Green, MD; Mayo Clinic GI Center, Joseph Murray, MD; University of Chicago Celiac Disease Program, Stefano Guandalini, MD; and University of Maryland Center for Celiac Research, Alessio Fasano, MD

Support Organizations: American Celiac Society, Annette Bentley; Celiac Disease Foundation, Elaine Monarch; and Gluten Intolerance Group, Cynthia Kupper, RD, CD

Industry Representatives: Dietary Specialties, Inc.; Gluten-Free Living Magazine; Gluten-Free Pantry; Bob and Ruth’s Dining & Travel Club; and Prometheus Laboratory.

Download the Sample Letter

Sample letter (Microsoft Word Format)

Sample letter (PDF Format)

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